Learn about the SCDEI
Sickle Cell Disease Eradication Initiative (SCDEI) is a registered humanitarian Community Based Organisation that is committed to eradicating Sickle Cell Disease in the community, through awareness raising and support to sickle cell warriors and their care providers.
Our Vision
An empowered society free of Sickle Cell Disease.
Mission
To empower Sickle Cell Disease warriors and the community with knowledge, services and skills for self-sustenance in order to achieve community development & healthy living.
Know about Sickle Cell Disease
“Sickle-cell Disease (SCD) is the most prevalent genetic disease in the WHO African Region”………The World Health Organisation.
COMMUNITY OUTREACH
Raising Awareness about Sickle Cell Disease
We are raising awareness through health education on Sickle Cell Diseases (SCD), pre-marital counselling and testing for Sickle Cell Diseases (SCD),early screening for the new-born babies amongst others.
Patient Care Support
We provide Patient care support through peer education, provision of unique identification to members for easy access to healthcare services. Special blood bank and transfusion services for SCD patients. Strengthening the capacity of healthcare providers on effective management and follow-up of SCD patients.
Improving Living Standard
We improve community livelihoods through vocational skills, financial literacy and entrepreneurship support. These help to empower the sickle cell disease patients, their families, caregivers and other community members, for self-sustenance, community development and healthy living.
FAQ
Questions on Sickle Cell Disease
Sickle cell disease is an inherited (genetic) condition or disorder that affects the body’s red blood cells (hemoglobin). It occurs when a child receives two sickle cell genes (ss)—one from each parent. In someone living with this disease, the red blood cells become hard and sticky and look like a C-shaped farm tool called a “sickle”.
When sickled red blood cells travel through small blood vessels, they get stuck and clog the blood flow. This can cause pain and other serious problems such as infection, acute chest syndrome and stroke. The pain experienced by people living with sickle cell disease can vary in intensity and last for a few hours to a few weeks.
Sickle cell disease is by far the commonest inherited disorder in the world with 75% of cases occurring in Africa. Nigeria contributes about half of the estimated 300,000 newborns with Sickle cell disorder annually, this causes immense suffering to patients, their families and caregivers. However, Yobe State of Nigeria has a recent prevalence of 32.6% – the highest in the country.
Sickle cell disease is most often discovered at birth during routine newborn screening tests or during laboratory investigations at the hospital.
ü high fluid intake
ü healthy diet
ü folic acid supplementation
ü pain medication
ü vaccination and antibiotics for the prevention and treatment of infections
ü a number of other therapeutic measures
Sickle Cell Disease Eradication Initiative Copyright (c) 2021
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